We met in 2004, were engaged in 2005, married in 2006 and had our first baby (Olivia Michelle) in 2007 ...Baby #2 (Alexia James) Joined us in November '09...We have enjoyed an amazing journey together so far...We look forward to many, many more years and the rest of our journey through life together as a family...This blog chronicles this journey through stories, comments, photo's and is intended for keeping in touch with our friends and family.
Saturday, July 31, 2010
MORE BIRTHDAY PICS from the second 3rd bday party!!!
Alexia was fascinated with the helium balloons!
The pool - always a big hit!!! (Jordan , Olivia and Gibson)...
Me with my Godson Wyatt...
...and with his baby sis, Sydney!
Baby Maguire!
Baby girl with daddy...getting out the bubble machine!
Mya and Olivia playing with the New Barbie Condo!
BFFs!
Alexia helping her big sis tear into presents - Alexia was right into it - it was very cute!
Wednesday, July 28, 2010
The Day of Olivia's 3rd Birthday
The group shot - ish...and mius one...lol
The kids from Olivia's daycare came over in the morning for a play and a lunch celebration! She was SO excited that her friends and Lisa were ALL coming over to HER house. It was cute. These are a great group of kids and they were so much fun to have over!
After lunch, getting ready to sing happy Happy Birthday and have cake! We also lit the candles 3 extra times so the kids could keep blowing them out!!! The highlight of the party!!!
Friday, July 16, 2010
*July 23/10 - Home from the hospital and doing OK. The nausea has been under control with the meds, the steroids keep my jittery and sleepless, but the mainthing is I'm back with my family and for now feeling OK.
This is a busy week as Olivia's bday is on Tuesday. Her daycare friends will be coming over for a play, lunch and cake. Should be fun. Saturday she will have a separate party with her other little friends - can't wait!
I'v also made the decision that what's left of my hair (which is literally strands) needs to come off this week, so from then on in it will be Au natural, party hair and scarves...oh to have so much choice! lol
My spirits are OK, nervous how close it is till transplant time. My understanding is that I'll have some baseline scans done in about 3 weeks then go into the SCT (more chemo and the infusion of cells) - Then we cross our fingers. Not sure what the stand on radiation will be for after - we'll cross that bridge when we come to it I guess.
Everyone have a nice weekend.
*I will be admitted to the hospital sometime on Sunday for about 3 days to receive my next round of chemotherapy. I likely will not be discharged until sometime on Wednesday. It`s the longest I will have been away from my kids which breaks my heart. I plan to drug myself heavily for three days so that i may sleep through the sadness (being away from home) and the emotions this whole process (ie the self poisoning) brings me.
Brad will be off Sunday until Tuesday with the girls. I hope he will stay patient with them (as he is not typically with them for this length of time, 2 at a time and on his own). I also hope he will ask for help when he needs it (ie in the evenings) - 5am till 9pm make for a long long day even when both girls are on their best behavior. It is rewarding - just long and often tiring. I feel trapped knowing that i will not be here doing MY job.
Think of us and wish us luck.
The O`Neil`s xo
This is a busy week as Olivia's bday is on Tuesday. Her daycare friends will be coming over for a play, lunch and cake. Should be fun. Saturday she will have a separate party with her other little friends - can't wait!
I'v also made the decision that what's left of my hair (which is literally strands) needs to come off this week, so from then on in it will be Au natural, party hair and scarves...oh to have so much choice! lol
My spirits are OK, nervous how close it is till transplant time. My understanding is that I'll have some baseline scans done in about 3 weeks then go into the SCT (more chemo and the infusion of cells) - Then we cross our fingers. Not sure what the stand on radiation will be for after - we'll cross that bridge when we come to it I guess.
Everyone have a nice weekend.
*I will be admitted to the hospital sometime on Sunday for about 3 days to receive my next round of chemotherapy. I likely will not be discharged until sometime on Wednesday. It`s the longest I will have been away from my kids which breaks my heart. I plan to drug myself heavily for three days so that i may sleep through the sadness (being away from home) and the emotions this whole process (ie the self poisoning) brings me.
Brad will be off Sunday until Tuesday with the girls. I hope he will stay patient with them (as he is not typically with them for this length of time, 2 at a time and on his own). I also hope he will ask for help when he needs it (ie in the evenings) - 5am till 9pm make for a long long day even when both girls are on their best behavior. It is rewarding - just long and often tiring. I feel trapped knowing that i will not be here doing MY job.
Think of us and wish us luck.
The O`Neil`s xo
Thursday, July 15, 2010
Olivia's photoshoot!
Tuesday, July 13, 2010
More July FAVS :)
My grandparents have been here the last week visiting from Colorado. It's been great having them here. Olivia and Alexia have both warmed right up to them and will be sad to see them leave today. This is the girls and I with my grandpa.
This is mom and I with the girls and my grandparents. We have 4 generations in this photo.
Sunday, July 11, 2010
The Cancer Update:
I had a Ct scan last Monday to see if we have made any progress in shrinking the tumors. A meeting with the doctors on Friday proves that there was a response to the last chemo and that the masses are still shrinking and there is no growth or new growth seen. I have what they call a partial response. Good enough to go into the transplant. However, I have decided to have one more round of chemo to see if we can further shrink these masses and then go into the stem cell transplant from there.
I have had some difficulty with congestion/hearing since the last treatment and at this point we are not sure if it`s due to the chemo. We are giving it this week on antihistamines to get a better idea. One of the drugs from my last chemo can cause hearing damage so to be on the safe side and prevent any further damage to my hearing we will likely use a different combo of drugs for the next round of chemo. Likely a regime referred to as ICE (which I believe i have had in the past).
I have a meeting on Friday to discuss the dates for this next chemo and maybe even project the timing of the SCT.
Because my cancer situation is no longer text book perse I don`t get to have the big picture plan from the get go, follow it and see how it goes from there...Rather I get to be treated in baby steps and develop the next steps based on progress from the last. I am a total planner, so this is very difficult for me. I find it very frustrating not to have the big picture plan up front.
I`m trying desperately to work on my spirit. The distraction of my two beautiful girls helps me do this. I love every minute I have with them, even the trying ones. I read of a young woman who once said (and don`t quote me exactly)...``I will plan cancer around my life, not my life around my cancer.`` I think she hit the nail right on the head here. I need to live my life first and foremost. I`ll schedule the cancer in where i can fit it.
I have allot on my mind, most of you can image (and some of you are completely oblivious)...I`m trying to keep my thoughts organized and to not let them consume me. The best way for me to do that it to keep living life as normal as I can. Obviously I can`t ignore the fact that I have cancer but when I can I like to put it on the back burner in my thoughts.
I`ve receive lots of cards, phone calls and the odd treat these last couple weeks and again I thank everyone. These little surprise really help our family spirits and let us know that everyone is routing for us. I (we) will win this battle in the end. My ultimate goal is to be around long enough to see my girls marry and have families of their own...and with any luck even longer...lol...ok with allot of luck. Realistically I probably won`t ever be cured of this disease but i hope to keep it at bay for a very long time again and then manage without allot of difficulties it when it needs to be manged sometime down the road.
I have more super-cute July pics of the girls - will try to post this week for your viewing pleasure!
Thanks for reading, Love the O`Neil`s xoxo
I had a Ct scan last Monday to see if we have made any progress in shrinking the tumors. A meeting with the doctors on Friday proves that there was a response to the last chemo and that the masses are still shrinking and there is no growth or new growth seen. I have what they call a partial response. Good enough to go into the transplant. However, I have decided to have one more round of chemo to see if we can further shrink these masses and then go into the stem cell transplant from there.
I have had some difficulty with congestion/hearing since the last treatment and at this point we are not sure if it`s due to the chemo. We are giving it this week on antihistamines to get a better idea. One of the drugs from my last chemo can cause hearing damage so to be on the safe side and prevent any further damage to my hearing we will likely use a different combo of drugs for the next round of chemo. Likely a regime referred to as ICE (which I believe i have had in the past).
I have a meeting on Friday to discuss the dates for this next chemo and maybe even project the timing of the SCT.
Because my cancer situation is no longer text book perse I don`t get to have the big picture plan from the get go, follow it and see how it goes from there...Rather I get to be treated in baby steps and develop the next steps based on progress from the last. I am a total planner, so this is very difficult for me. I find it very frustrating not to have the big picture plan up front.
I`m trying desperately to work on my spirit. The distraction of my two beautiful girls helps me do this. I love every minute I have with them, even the trying ones. I read of a young woman who once said (and don`t quote me exactly)...``I will plan cancer around my life, not my life around my cancer.`` I think she hit the nail right on the head here. I need to live my life first and foremost. I`ll schedule the cancer in where i can fit it.
I have allot on my mind, most of you can image (and some of you are completely oblivious)...I`m trying to keep my thoughts organized and to not let them consume me. The best way for me to do that it to keep living life as normal as I can. Obviously I can`t ignore the fact that I have cancer but when I can I like to put it on the back burner in my thoughts.
I`ve receive lots of cards, phone calls and the odd treat these last couple weeks and again I thank everyone. These little surprise really help our family spirits and let us know that everyone is routing for us. I (we) will win this battle in the end. My ultimate goal is to be around long enough to see my girls marry and have families of their own...and with any luck even longer...lol...ok with allot of luck. Realistically I probably won`t ever be cured of this disease but i hope to keep it at bay for a very long time again and then manage without allot of difficulties it when it needs to be manged sometime down the road.
I have more super-cute July pics of the girls - will try to post this week for your viewing pleasure!
Thanks for reading, Love the O`Neil`s xoxo
Tuesday, July 06, 2010
June Favorites!
Olivia - Bath time FUN!
Alexia - Bath time fun!
The girls horsing around before supper!
More Bath fun!
Playing together in the morning...
The girls were helping daddy in the back yard before bed...
AND, More bath fun!
Getting ready to go to Mya's bday Party!
Olivia playing with her little sis at the music table!
My big helper...Olivia feeding Alexia. Alexia LOVES mealtime!
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